{"id":9145,"date":"2021-07-04T18:25:12","date_gmt":"2021-07-04T09:55:12","guid":{"rendered":"https:\/\/www.exitinternational.net\/?p=9145"},"modified":"2021-07-04T20:36:25","modified_gmt":"2021-07-04T12:06:25","slug":"victorias-voluntary-assisted-dying-is-challenging-complicated","status":"publish","type":"post","link":"https:\/\/www.euthanasia.net\/exit\/victorias-voluntary-assisted-dying-is-challenging-complicated\/","title":{"rendered":"Victoria\u2019s voluntary assisted dying is challenging &#038; complicated"},"content":{"rendered":"<p>In an article published this week on <a href=\"https:\/\/theconversation.com\/victorias-voluntary-assisted-dying-scheme-is-challenging-and-complicated-some-people-die-while-they-wait-162094\">The Conversation<\/a> website titled Victoria\u2019s voluntary assisted dying scheme is challenging and complicated, authors Ben While and Lindy Willmott argue that some people are dying while they wait to qualify to use the law. They write:<\/p>\n<p>Voluntary assisted dying laws, which allow terminally ill people who meet strict eligibility criteria to end their life, have been operating in Victoria [Australia] for two years. The laws are underpinned by two central pillars: safety and access.<\/p>\n<p>Safety means the only patients who can access assistance to die are those who meet the eligibility criteria set out in the legislation. This means terminally ill adults who are suffering and expected to die within six months (12 months for neurodegenerative conditions).<\/p>\n<p>Access refers to the ability of patients who meet the eligibility criteria, and want voluntary assisted dying, to actually use the laws. This depends on the process not taking too long or being so challenging that a patient just gives up, or dies before access is granted.<\/p>\n<p>Our research papers, <a href=\"https:\/\/theconversation.com\/victorias-voluntary-assisted-dying-scheme-is-challenging-and-complicated-some-people-die-while-they-wait-162094\">published today<\/a> in the <em>Medical Journal of Australia<\/em> and recently in BMJ Supportive and Palliative Care, found doctors involved with the Victorian scheme have concerns about access, but not about safety.<\/p>\n<p>A major barrier to patients\u2019 access is the requirement for the doctor to obtain a permit from the government. This is a key component of the system\u2019s oversight. It involves a formal application to a government official who decides within three business days whether the legislation\u2019s processes have been followed and certain criteria met.<\/p>\n<p>The government permit is a feature of the Victorian law, and one which Tasmania and South Australia have copied. [If Victoria\u2019s voluntary assisted dying scheme is challenging and complicated so the new laws of other states will follow suit].<\/p>\n<p>But not all Australian states have followed suit. The Western Australian law, which comes into effect this week, does not include a permit process, nor does Queensland\u2019s bill. We prefer the WA and Queensland model.<\/p>\n<p><strong>Barriers to access<\/strong><\/p>\n<p>To understand how the Victorian system is operating, we interviewed 32 doctors who had provided voluntary assisted dying services to patients, to hear about their experience of the system in its first year.<\/p>\n<p>When talking about the prior oversight and approval process, most said they were concerned about navigating the system, including the layers of approval required, the \u201cbureaucracy\u201d involved in the process, and challenges with the mandatory online system for submitting forms. This led to delays in patients accessing the system.<\/p>\n<p>The doctors we interviewed also raised concerns about prior oversight and approval being a barrier to very sick patients accessing the scheme. One described \u201cpeople dying going through this process\u201d. Another said: \u201cif you\u2019re unwell and you really need it, it doesn\u2019t work\u201d.<\/p>\n<p>Another doctor said:<\/p>\n<p>Of the patients that I\u2019ve been working with, only four have been able to get through to the completion of the process. It\u2019s been one of our issues [\u2026] it is complicated and because there\u2019s a lot of bureaucracy to encounter and a lot of hurdles to jump [\u2026]<br \/>\nDespite concerns about the system, some doctors in our study considered having prior oversight and approval protected them and ensured the system\u2019s safety.<\/p>\n<p><strong>Seeking government approval isn\u2019t the norm<\/strong><\/p>\n<p>Requiring prior approval of voluntary assisted dying is very unusual. Around the world, only the Victorian and Colombian systems require external prior approval.<\/p>\n<p>However, other places are now considering or implementing this model, such as Tasmania and SA, whose laws which are yet to come into force.<\/p>\n<p>Currently, all other voluntary assisted dying systems internationally use retrospective review of cases to ensure the system remains safe. With retrospective review, doctors can approve access to the scheme, and their decisions are later examined by review committees.<\/p>\n<p>If voluntary assisted dying has been inappropriately granted, the doctor may face possible sanctions or criminal prosecution. But the doctors don\u2019t need to get government permission first.<\/p>\n<p><strong>Access must be a priority too<\/strong><\/p>\n<p>Parliaments debating new voluntary assisted dying laws and governments implementing existing ones must keep in mind the people who are intended to use it, who by virtue of the eligibility criteria, are terminally ill and suffering.<\/p>\n<p>They must ensure the design and implementation of the system meets these patients\u2019 needs. This includes thinking critically about the potential cost to access of some safeguards.<\/p>\n<p>The scheme needs to be accessible for those who meet the criteria and intend to use it.<\/p>\n<p>Given that prior oversight and approval is rare internationally and the difficult Victorian experience with it, we consider this is not desirable, or needed.<\/p>\n<p>However, where laws require such prior approval, system design must ensure this is done efficiently. This includes avoiding bureaucracy that doesn\u2019t directly improve patient safety, and an optimal information technology system. This will help to at least minimise delays that could preclude dying patients accessing the system.<\/p>\n<p><a href=\"https:\/\/www.exitinternational.net\/victorias-voluntary-assisted-dying-scheme-is-challenging-and-complicated\/conversation-icon\/\" rel=\"attachment wp-att-9146\"><img loading=\"lazy\" class=\"aligncenter wp-image-9146 size-large\" title=\"Victoria\u2019s voluntary assisted dying is challenging &amp; complicated\" src=\"https:\/\/www.exitinternational.net\/wp-content\/uploads\/2021\/07\/Conversation-icon-620x359.jpeg\" alt=\"Victoria\u2019s voluntary assisted dying is challenging &amp; complicated\" width=\"620\" height=\"359\" srcset=\"https:\/\/www.euthanasia.net\/exit\/wp-content\/uploads\/2021\/07\/Conversation-icon-620x359.jpeg 620w, https:\/\/www.euthanasia.net\/exit\/wp-content\/uploads\/2021\/07\/Conversation-icon-300x174.jpeg 300w, https:\/\/www.euthanasia.net\/exit\/wp-content\/uploads\/2021\/07\/Conversation-icon-768x445.jpeg 768w, https:\/\/www.euthanasia.net\/exit\/wp-content\/uploads\/2021\/07\/Conversation-icon-220x127.jpeg 220w, https:\/\/www.euthanasia.net\/exit\/wp-content\/uploads\/2021\/07\/Conversation-icon-130x75.jpeg 130w, https:\/\/www.euthanasia.net\/exit\/wp-content\/uploads\/2021\/07\/Conversation-icon.jpeg 1000w\" sizes=\"(max-width: 620px) 100vw, 620px\" \/><\/a><\/p>\n<p><strong>Editor&#8217;s Note<\/strong> &#8211; Philip Nitschke has long argued that the 63 &#8216;safeguards&#8217; built in to the Victorian legislation (and all other Australian states) is overly restrictive and punishing on those who seek to use the law.<\/p>\n<p>This new research bears this out.<\/p>\n<p>The paranoia about system misuse must stop.<\/p>\n<p>A peaceful death should not be made so hard!<\/p>\n","protected":false},"excerpt":{"rendered":"<p>In an article published this week on The Conversation website titled Victoria\u2019s voluntary assisted dying scheme is challenging and complicated, authors Ben While and Lindy Willmott argue that some people are dying while they wait to qualify to use the law. They write: Voluntary assisted dying laws, which allow terminally ill people who meet strict [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":9176,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"ngg_post_thumbnail":0},"categories":[1,101],"tags":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v15.9.2 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<meta name=\"description\" content=\"Victoria\u2019s voluntary assisted dying is challenging &amp; complicated and makes Exit&#039;s longtime assertion of beg and grovel laws correct.\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.euthanasia.net\/exit\/victorias-voluntary-assisted-dying-is-challenging-complicated\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Victoria\u2019s voluntary assisted dying is challenging &amp; complicated - Exit International\" \/>\n<meta property=\"og:description\" content=\"Victoria\u2019s voluntary assisted dying is challenging &amp; 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